Below is a chronological list of my Long COVID media advocacy. I compiled this list for 2 distinct reasons:
1. To show a history of Long Hauler activism, trying to warn and educate the public - including our governments and healthcare systems - since the spring of 2020. To show that this wasn't some easy trajectory to global awareness, and was instead done on the backs of patients who sincerely cared about protecting and informing you, and doing right by the centuries-ignored infection-initiated chronic illness community; and
2. To educate those who claim that Long COVID isn't real, or thinks that Long COVID is the result of mass hysteria, or thinks that Long COVID and post-viral illness is psychosomatic, or simply thinks that us patients are exaggerating.
Long Haulers and all with post-viral chronic illness are the canaries in the coal mine. As such, the goal of this page is to highlight that listening to patients without judgement, biases or prejudices can save many - including you, your loved ones and themselves - from unnecessary and additional trauma and hardships.
That the sooner and more compassionately we listen and support, that the sooner we all can heal and move forward collectively. Our collective future is dependent upon it.
March 26, 2020
EatingWell Article: "What It's Like to Have Coronavirus, According to Someone Who's Tested Positive"
May 2, 2020
Business Insider: "For a growing number of COVID-19 patients, symptoms last more than a month. Four young patients who've been sick 30-plus days say they're 'terrified.'"
June 2, 2020
Advisory Board: "What we know (so far) about the long-term health effects of Covid-19"
July 14, 2020
FOX KTVU: "COVID-19 support group brings attention to patients struggling relapses and months-long symptoms"
August 31, 2020
Boston Globe: "For some, COVID-19 symptoms linger for months"
October 6, 2020
NBC Boston News: "‘You Worry About the Side Effects': Doctors Discuss Trump's COVID Treatments"
January 21, 2021
The New York Times Magazine: "What If You Never Get Better From Covid-19?"
March 1, 2021
Eat This, Not That: "Sure Signs You've Already Had COVID, According to Doctors"
July 13, 2021
Wall Street Journal: "Are Latent Viruses Causing Long Covid-19 Symptoms? Patient Groups Push for Testing"
November 22, 2021
STAT News: "From medical gaslighting to death threats, long Covid tests patients"
February 8, 2022
Al Jazeera English: Video Clip for The Stream, "What's needed to defeat Long Covid?"
March 17, 2022
Kaiser Health News: "Covid’s ‘Silver Lining’: Research Breakthroughs for Chronic Disease, Cancer, and the Common Flu"
April 10, 2020
7 News Boston: "Boston resident who contracted COVID-19 says she’s been battling symptoms for almost a month"
May 7, 2020
NBC News Boston: "54 Days Later: Boston Woman Still Suffering From Coronavirus Symptoms"
June 4, 2020
CBS Boston: ‘I Found My People’: Online Support Groups Help People Isolated With Coronavirus
August 12, 2020
Columbia Journal Review: "How to cover COVID-19 patients sensitively"
September 20, 2020
The Week: "Even after supposedly recovering, thousands of Americans are suffering persistent and even disabling symptoms"
October 21, 2020
Ottawa Citizen: "It hurts to be alive': Stories from COVID-19 long-haulers"
January 28, 2021
Ottawa Citizen: "The tip of the iceberg': COVID long-haulers facing financial ruin"
March 17, 2021
Vox: "You can’t get away from the idea that you’re just lucky to be alive"
September 30, 2021
TIME Magazine "Can Breakthrough Infections Lead to Long COVID? For an Unlucky Few, Yes"
January 19, 2022
VeryWell Health: "What Should We Expect From Long COVID Treatment?"
February 21, 2022
Well + Good: "How Long COVID Survivors Can Manage Mental Health, According to Therapists"
April 16, 2020
Boston 25 News: "COVID-19 patient on day 35 of symptoms says ‘it’s horrific’"
May 15, 2020
Boston 25 News: "25 Investigatos: Antibody tests are both promising and perplexing"
June 12, 2020
Vox: "The emerging long-term complications of Covid-19, explained"
August 19, 2020
The Atlantic: "Long Haulers are Redefining COVID-19"
*Ed Yong, award winning article*
September 28, 2020
The TODAY Show: "What are coronavirus ‘long haulers’? 3 women share their journeys"
November 30, 2020
The Road to Vaccine Series: "What We Now Know About How to Overcome COVID-19 in the U.S." (Season 2, Ep. 2)
February 1, 2021
California Healthline: "Long-Haul Covid Cases Cast New Light on Chronic Fatigue Sufferers"
April 15, 2021
Business Insider: "COVID long-haulers are killing themselves as symptoms become too painful to bear — but support groups offer relief"
October 6, 2021
Rolling Stone: "People With Long Covid Are Risking Their Health Going Back to the Office"
January 22, 2022
AOL: "What needs to be done to address ‘long COVID’?"
February 23, 2022
New Scientist: "We're closing in on the causes of long covid and possible treatments"
May 1, 2020
The Guardian: "‘Lingering and painful: the long and unclear road to coronavirus recovery"
May 21, 2020
Vox: "My coronavirus survivor group is my most important medical support right now"
July 4, 2020
Business Insider: "Meet the 'long-haulers': A growing chorus of coronavirus patients have had symptoms for more than 100 days"
August 23, 2020
VeryWell Health: "Women With Chronic COVID-19 Struggle To Be Heard By Doctors"
October 2, 2020
The Seattle Times: "How COVID-19 affects some people long after they become infected with the coronavirus"
January 5, 2021
The Guardian: "'I'm still at half-capacity': long Covid sufferers reflect on brutal year"
February 15, 2021
Eat This, Not That: "Proven Signs You Already Had COVID, According to New Report"
June 23, 2021
CNN: "First came Covid, then long-haul symptoms. And now they're battling the guilt of having survived it all"
October 18, 2021
Gothamist: "Chronic Weight Loss And Malnutrition Join Devastating List Of Long COVID Symptoms"
January 31, 2022
Well+Good: "7 Ways To Support a Friend or Family Member Who Has Long COVID"
March 10, 2022
Refinery29: "How Long Covid Is Shaping Up To Be A Feminist Fight"